Wow….when Ryan’s meds get out of adjustment, life gets real complicated real fast.
We’ve been parked outside Kokomo or Dayton for several months, because Ryan’s explosive behaviors have required doctor visits every week or three, and because traveling in the coach adds complexities that we don’t need right now.
Every day has involved constant physical contact and activity with him in an effort to avoid meltdowns that leave him bruised and us breathless. Robyn has borne nearly the entire burden of this interaction, because I don’t seem to understand how to soothe him out of these titanic events….
I tell you this to give a little view into some of the other aspects of this life we lead….living the dream.
The interruptions of Ryan’s behavior have kept us from planning any kind of contact with you and our other friends….it has interfered with my contacts with my brother here in town!
What often works is to get in the car and drive…anywhere. In the summer heat, we’ll stop at Home Depot and have the boys push shopping carts until they’ve gotten enough exercise in those wide aisles. Some days we’ll visit three different Depot or Lowe’s stores.
We stop to smell the roses as much as we can. Ryan generally does well walking for short periods in a quiet environment, and Ross is just a wonderful little man who loves riding in the car, loves pushing carts, and walks so attentively with me…and waits as I stop for a quick photo.
I’m sorry to have kept you in the dark for these months. The environment, my mood, and the constant activity have not allowed me to spend time sharing with you.
Please don’t worry that you could have done something to help us…we know how to reach out, but this one has needed every thread of Robyn’s care, creativity, and compassion to get this far, and no one else understands Ryan sufficiently to be of value for even 10 minutes.
There is light at the end of this tunnel. We have achieved some meaningful improvement. We’re beginning to look at moving on before cold and rain set in around here.
In the coming days I hope to share some of the things we’ve seen and done during the past months. Today, I leave you with some of our simple joys….